This powerful book is a carefully curated guide to helping mothers understand life with a child who has received an existence-altering diagnosis. The author approaches this topic from a personal standpoint, providing real-life examples from their own experience of raising a child living with a severe, rare disease. The advice in this book blends research, personal testimony, experience, as well as faith-based insights. At their core, these testimonies acknowledge that what drives mothers to go above and beyond when meeting the needs of their child is love. Most of all, this book gives an organized and detailed caregiving plan that encourages its audience to also engage in self-care methods such as taking breaks, alternating caregiving duties with a spouse or partner, and engaging other trusted friends and parents in caretaking.

One of the strongest points that the book makes is that parents need support, too. Some of the text's most engaging elements are the sections discussing how to find joy in the face of stressful family circumstances. For example, the author writes, "I never understood that joy and pain could exist at the same time. It still pains me to see all that my son has to endure. I feel pain on a regular basis from all sorts of circumstances and situations with his rare disease." The author does not shy away from exploring the hardships of raising a child with a rare illness. Thus, this book is a must-read not only for parents but also for family members and even the general public.

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